Associate Director, Patient Advocacy, Skeletal Dysplasia

The Associate Director, Patient Advocacy, Skeletal Dysplasia will develop and execute patient advocacy activities that support BridgeBio's work in skeletal dysplasia, primarily focusing on Europe, Latin America and other international markets as needed, and requires fluency in both Portuguese and Spanish. The role has responsibility for the development and execution of the skeletal dysplasia patient advocacy activities in support of clinical development and commercialisation, while safeguarding long-term patient trust and community relationships in support to the Global and International Patient Advocacy strategy. Reporting to the Executive Director of International Patient Advocacy, this role drives engagement across the skeletal dysplasia community in Latin America, Europe and supports other relevant international and local markets as needed.

Responsibilities

Develop and execute patient advocacy activities supporting skeletal dysplasia work, primarily in Europe, Latin America and other international markets; serve as primary liaison to patient advocacy organizations; support development of the international patient advocacy strategy and plan; represent BridgeBio at patient advocacy and community meetings; bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning; plan and deliver engagement activities such as advisory boards, patient organization meetings, educational initiatives, community surveys, patient videos and input on patient-facing materials; adapt engagement and communications for Spanish- and Portuguese-speaking and other international communities; support strategic planning and oversight of advocacy-related budgets; work with local and international teams to understand care pathways, access barriers and advocacy environments; coordinate international grants, sponsorships, advisory engagements and program budgets; share community insights while protecting individual privacy; monitor policy changes for patient organization engagement and ensure compliance with company standards and local laws; promote a patient-first culture; strengthen BridgeBio's role as a trusted partner in the skeletal dysplasia advocacy community through presentations and external forums; frequent travel across Europe, Latin America and other relevant geographies

Requirements

Bachelor's degree required, preferably in a scientific field; advanced degree preferred; 5+ years of patient advocacy or community engagement experience, including 3+ years within biotech/pharma; experience working with rare disease communities, with skeletal dysplasia or other genetic rare conditions preferred; fluency in both Spanish and Portuguese required; strong professional English required; knowledge of German and French is an advantage; demonstrated ability to build trusted partnerships with patient organizations across countries and cultures, ideally including Latin America; understanding of patient engagement requirements, healthcare systems, and access considerations across international markets, with familiarity with Europe and Latin American markets preferred; strong cross-functional collaboration, clear communication, and ability to manage multiple priorities independently in a matrixed organization; willingness and ability to travel frequently across Europe, Latin America and other relevant geographies

Nice to have

Experience with skeletal dysplasia or other genetic rare conditions; knowledge of German and French; familiarity with Europe and Latin American markets; advanced degree

Benefits

Market-leading compensation; remote/hybrid work model; career development through regular feedback, continuous education and professional development programs; financial rewards, peer-to-peer recognition, and growth opportunities; 401(k) with employer match; Employee Stock Purchase Program (ESPP); pre-tax commuter benefits; referral bonus; subsidized lunch and parking on in-office days; 100% employer-paid medical, dental, and vision premiums for you and your dependents; Health Savings Account (HSA) with employer contributions and Flexible Spending Accounts (FSA); fertility and family-forming benefits; expanded mental health support; flexible paid time off and company-paid holidays; comprehensive paid medical and parental leave; LinkedIn Learning, LifeLabs, and BetterUp Coaching