Associate Director, Patient Advocacy, Skeletal Dysplasia

The Associate Director, Patient Advocacy, Skeletal Dysplasia will develop and execute patient advocacy activities that support BridgeBio's work in skeletal dysplasia, primarily focusing on Europe, Latin America and other international markets as needed, and requires fluency in both Portuguese and Spanish. The role has responsibility for the development and execution of the skeletal dysplasia patient advocacy activities in support of clinical development and commercialisation, while safeguarding long-term patient trust and community relationships in support to the Global and International Patient Advocacy strategy. Reporting to the Executive Director of International Patient Advocacy, this role drives engagement across the skeletal dysplasia community in Latin America, Europe and supports other relevant international and local markets as needed, ensuring community insights inform company strategy and decision-making. The Associate Director supports the development of external international partnerships and advocacy and educational initiatives, strengthening meaningful outreach across the region.

Responsibilities

Develop and execute patient advocacy activities supporting BridgeBio's work in skeletal dysplasia, primarily in Europe, Latin America and other international markets; Serve as the primary liaison to patient advocacy organizations in Latin America, Europe and other international markets; Support the development of the patient advocacy strategy and implement an international patient advocacy plan for skeletal dysplasia; Represent BridgeBio at patient advocacy and community meetings across Europe, Latin America and other international markets; Bring patient and caregiver perspectives into clinical development, medical affairs, regulatory, market access, and commercial planning; Plan and deliver engagement activities such as advisory boards, patient organization meetings, educational initiatives, community surveys, patient videos and input on patient-facing materials; Adapt engagement and communications for Spanish- and Portuguese-speaking and other international communities; Support the Executive Director of International Patient Advocacy in strategic planning and oversight of advocacy-related budgets; Work with local and international teams to understand care pathways, access barriers, community priorities, and advocacy environments; Coordinate international grants, sponsorships, advisory engagements, and program budgets in line with applicable policies and local requirements; Share actionable community insights with internal partners while protecting individual privacy and patient trust; Monitor and report changes in relevant policies and industry requirements for patient organization engagement and ensure external activities meet company standards and local laws; Promote a patient-first culture through internal activities and company materials; Strengthen BridgeBio's role as a trusted partner in the skeletal dysplasia advocacy community through presentations and participation in external forums

Requirements

Bachelor's degree required, preferably in a scientific field; 5+ years of patient advocacy or community engagement experience, including 3+ years within biotech/pharma; Fluency in both Spanish and Portuguese; Strong professional English; Demonstrated ability to build trusted partnerships with patient organizations across countries and cultures; Understanding of patient engagement requirements, healthcare systems, and access considerations across international markets; Strong cross-functional collaboration, clear communication, and the ability to manage multiple priorities independently in a matrixed organization; Willingness and ability to travel frequently across Europe, Latin America and other relevant geographies

Nice to have

Advanced degree; Experience with skeletal dysplasia or other genetic rare conditions; Knowledge of German and French; Familiarity with Europe and Latin American markets

Benefits

Market-leading compensation; Remote/Hybrid work model; Career development through regular feedback, continuous education and professional development programs; Financial rewards, peer-to-peer recognition, and growth opportunities